Challenges in the diagnosis, classification and prognosis of ANCA-associated vasculitis.
A landmark review in Nature Reviews Rheumatology calls for a new, integrated approach to ANCA-associated vasculitis.When diagnosis, classification, biomarkers and patient experience come together, care becomes truly personal — and outcomes improve.
Fasenra not reimbursed in France
French EGPA patients and their doctors received disappointing news recently when the French health authority (HAS) decided not to reimburse Fasenra (benralizumab) for treating EGPA. This decision has created significant concern within the EGPA community, as it limits access to what could be an important alternative treatment option.
EESG Meeting in Paris
On September 18th, 2025, leading EGPA specialists from across Europe gathered in Paris for the 10th meeting of the European EGPA Study Group. The research-focused conference, held at the historic Maison de l’Amérique Latine, brought together doctors and researchers to present and discuss the latest scientific developments in understanding and treating this rare autoimmune condition. A small number of patient representatives also attended this primarily medical meeting.
AIVA a New vasculitis organization in Italy
In July AIVA joined us at Vasculitis International. On Thursday july 26th 2024 this brand new vasculitis group was officially presented to the wider public, including the Italian parliament. AIVA(Associazione Italiana Vasculiti ANCA) focuses on ANCA-associated forms of vasculitis and they want to bridge the information gap, enhance information and increase awareness of AAV at […]
Takayasu France
We are very happy to welcome L’Association Takayasu France, as a member. Takayasu is a very rare disease, even compared to other forms of vasculitis. According to her president Christine Nicollet, Takayasu France exists to let these patients know that they are not alone. That there is an organization out there that can help them […]
2024 Barcelona Patient Conference
Following the success of the 2022 Vasculitis Patient Conference another one was organized in 2024 linked to the 21st International Vasculitis Workshop in Barcelona. Three members of Vasculitis International closely worked together with the Vasculitis Foundation (the patient organization from the USA) in order to make this happen. […]
Patient Conference Dublin
On April 3-6 the most important scientifice conference on vasculitis took place in Dublin . It was the 20th International Vasculitis and ANCA Workshop. Preceding this scientific conference a patient conference was organized by Vasculitis Ireland Awareness and supported by a team from Vasculitis International and a number of international young researchers. They also interviewed […]