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Takayasu

Takayasu Arteritis (TA) is an inflammatory disease of the large arteries. TA particularly affects the aorta (the main artery taking blood from the heart to the rest of the body), and the pulmonary artery (which sends blood to the lungs). The major arteries that arise from the aorta may also be affected. These include the subclavian arteries that supply the arms, renal arteries to the kidneys, coronary arteries in the heart and carotid arteries in the head and brain. (see illustrations below)

Takayasu

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Takayasu

Association Takayasu France

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News

Tag-der-Selbsthilfe

Germany’s Tag der Selbsthilfe

10 September, 2026 No Comments

Germany’s Tag der Selbsthilfe on 16 September highlights the important role of local self-help groups. Vasculitis International is connecting vasculitis SHGs across Germany, combining peer support close to home with wider cooperation, shared knowledge and patient advocacy.

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EC revokes Market Authorisation Tavneos®

7 August, 2026 No Comments

This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.

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NEJM Retracts avacopan article

NEJM Retracts avacopan article

1 July, 2026 No Comments

Last week added another significant step to the avacopan story: on 29 June 2026, the New England Journal of Medicine retracted the original 2021 ADVOCATE article on Tavneos.

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  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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