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      • ATAK – Takyasu Spain
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Kosapo

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  • Diseases: ALL Vasculitis Diseases
Japan

The Collagen Disease, Rheumatoid Arthritis and Vasculitis Support Network, a non-profit organization (corporation number 4010705003458) was established in 2022 and is based in Tokyo, Japan.

Our core mission focuses on providing information, offering psychosocial support to patients and their families, conducting research, and promoting public awareness.

Through these efforts, we aim to ensure that patients with physical illnesses, such as rheumatic diseases or vasculitis-related syndromes, and their families can receive appropriate treatment with confidence, based on accurate information.

We hope to contribute to creating a more supportive environment through collaboration with patients, their families, and related professionals, so that those affected by physical illnesses can lead healthy lives without feeling isolated from society.

Contacts

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Oriko Okochi

Noriko Okochi

Representative Director 

  • Email: info@kosapo.org

特定非営利活動法人膠原病・リウマチ・血管炎サポートネットワーク(法人番号4010705003458)は2022年に設立され、東京を拠点としています。

わたしたちの活動の中心は、情報を提供すること、患者さんやご家族への心理社会的支援、研究、啓発活動を行うことです。

これにより、膠原病関連疾患、リウマチ系疾患、血管炎症候群を含む身体疾患の患者さんとそのご家族が、正確な情報に基づいた治療を安心して受けられるようになることをめざしています。

患者さんやご家族が社会で孤立感を感じることなく健康な生活を送ることが可能になるよう、身体疾患をもつ患者さん、ご家族、関連する専門家との協働を通じて、より望ましい環境の創造に貢献したいと考えています。

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  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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