And why you should join us
Our mission is “to encourage and support international collaboration between vasculitis patient advocacy groups (VPAGs)”.
‘Connecting the dots’ so to speak.
Where Vasculitis Patient Advocacy Groups (VPAGs) focus on supporting the individual patient and their caregivers we as Vasculitis International focus on helping VPAGs.
Although this site will provide you with some basic knowledge on vasculitis, we are not going to reproduce all the info already available. We will just let you know where to find vasculitis patient organizations and hospitals with a specific expertise in vasculitis. And most of all we will encourage you to join us and collaborate.
You are an existing patient organization but:
you don’t have a (proper) website,
you don’t have sufficient information in your own language,
you don’t have the right medical contacts,
you don’t know how to reach out to other patients
you don’t have the resources to do what you would like to do
In all those cases we can help.
for FREE while you stay independent
Simply because we want to help.
Because we are patients our selves.
We have been there, done that…
you live in a country but there is no patient advocacy group for vasculitis patients.
We can help you create one. (whether you are a doctor or a patient…)
We encourage patients and vasculitis doctors in those countries to create such a group.
As Vasculitis International we will actively help you in doing so.
you are proud of the patient organization you already have.
You should definitely join us !
WE can learn from you
YOU can learn from us
We can share information, lessons learnt and ideas
We can work together in international projects or events
Doubts ?? Contact one of the existing VPAGs and find out more!