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    Introduction

    • Vasculitis Classification

    Large Vessel Vasculitis

    • GCA (Giant Cell Arteritis)
    • Takayasu

    Small Vessel Vasculitis

    AAV (ANCA Associated Vasculitis)

    • EGPA
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Vasculitis Netherlands

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  • Diseases: ALL Vasculitis Diseases, Behçet
  • Netherlands

Vasculitis Stichting is the Dutch term for Vasculitis Foundation.  Since ‘stichting’ is a difficult word for non-Dutch speaking people we often refer to our organisation as Vasculitis NL.

Vasculitis NL is a Vasculitis Patient Advocacy Group for people with a primary systemic vasculitis and their beloved ones.

Vasculitis NL was founded in 1989 and has been growing ever since. At the end op 2021 there were 1620 paying members, 1500 of which are vasculitis patients.

Members are paying 25 euro’s per year.

The majority of the 1500 patients are AAV patients: 1000 with GPA,  100 GPA , 200 EGPA.

Detailed information in Dutch can be found at our website www.vasculitis.nl

Contacts

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Maureen van Engelen

Chair

  • Email: voorzitter@vasculitis.nl
  • Work: +31 088 00 22 333

Welkom !

De Vasculitis Stichting is de enige patiëntenorganisatie in Nederland die zich specifiek bezig houdt met (alle vormen van) vasculitis.

Omdat ‘stichting’ een moeilijk woord is voor anderstaligen, noemen we onze organisatie vaak Vasculitis NL.

Vasculitis NL is een Vasculitis Patient Advocacy Group voor mensen met een primaire systemische vasculitis en hun dierbaren.

Vasculitis NL is opgericht in 1989 en groeit sindsdien.

Eind 2021 waren er 1620 betalende leden, waarvan 1500 vasculitispatiënten.

Leden betalen 25 euro per jaar.

De meerderheid van de 1500 patiënten zijn AAV-patiënten: 1000 met GPA, 100 GPA, 200 EGPA.

Uitgebreide informatie in het Nederlands is te vinden op onze website www.vasculitis.nl

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  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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