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    Flag_Netherlands

    Netherlands

    17 million people

    Approx. ​3500 – 4500 vasculitis patients
    of which 2800 – 3000 GPA/Wegener

    Borders Belgium and Germany
    41,543 square kilometers
    33,893 sq km land and
    7,650 sq km water

    More info at the CIA… ​

    Netherlands

    Welcome

    The Netherlands is fortunate with the way in which care for vasculitis patients is organized.

    • There is a government-supported patient organization. 
    • You will find no fewer than 7 hospitals operating a vasculitis center of expertise.
    •  There is the medical platform ARCH that brings together regional knowledge.
    • Reuma Nederland is a very active organization and
    • The Netherlands is internationally active in the European Reference Network RITA, for patients with a malfunctioning immune system.

    WELKOM

    Nederland mag zich gelukkig prijzen met de manier waarop de zorg voor vasculitispatiënten is georganiseerd.

    • Er is een door de overheid ondersteunde patiëntenorganisatie.
    • U vindt er maar liefst 7 ziekenhuizen met een vasculitis expertisecentrum.
    • Er is het medisch platform ARCH dat regionale kennis samenbrengt.
    • Reuma Nederland is erg actief
    • Internationaal is Nederland actief in het European Reference Network RITA voor patiënten met een niet goed functionerend afweersysteem.

    Primary contact:

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    Jan van Zeijl

    voorzitter

    • Email: voorzitter@vasculitis.nl
    • Work: 088 00 22 333

    Omschrijving

    Patient Advocacy groups

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    logo VAS

    Vasculitis Netherlands

    Disease(s):

    ALL Vasculitis Diseases

    Are you a patient advocacy group ?

    respresenting patients with a primary form of vasculitis ?
    JOIN US !

    Centers of Expertise

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    aumc_logo

    Amsterdam UMC

    aumc_logo

    Emma Kinderziekenhuis

    Erasmus MC

    Erasmus MC

    LUMC_Logo

    Leiden UMC

    mum logo

    Maastricht UMC

    Meander Medical Centre

    Logo_UMCG

    UMC Groningen

    Are you a vasculitis expert centre ?

    dealing with one or more forms of a primary vasculitis
    JOIN US !

    News

    FDA warning avacopan

    Update Tavneos Review – April 2026

    Rare Disease Day 2026

    Lungs and ANCA

    ILD and ANCA

    ema-review-2

    EMA starts Review Tavneos®

    Review Patient Summit 2025

    Tulou cluster

    Challenges in the diagnosis, classification and prognosis of ANCA-associated vasculitis.

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    join us today 

    Do it Now

    About us

    • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
    • If there is no existing VPAG in a particular country we can  help to create one.
    • We collaborate with any institution willing to help us in achieving these goals.

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