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    Introduction

    • Vasculitis Classification

    Large Vessel Vasculitis

    • GCA (Giant Cell Arteritis)
    • Takayasu

    Small Vessel Vasculitis

    AAV (ANCA Associated Vasculitis)

    • EGPA
    • GPA
    • MPA

    Immune Complex Vasculitis

    • Cryoglobulinemic Vasculitis
    • IgA vasculitis (Henoch Schönlein)
    • Anti GBM Vasculitis (Goodpasture)
    • Anti C1q vasculitis (hypocomplementic)

    Medium Vessel Vasculitis

    • PAN (Polyarteritis Nodosa)
    • Kawasaki Disease

    Variable Vessel Vasculitis

    • Behçet
    • Cogan Syndrome

    Single Organ Vascilitus

    • Cutaneous Leucoclastic Vasculitis
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Flag_Netherlands

Netherlands

17 million people

Approx. ​3500 – 4500 vasculitis patients
of which 2800 – 3000 GPA/Wegener

Borders Belgium and Germany
41,543 square kilometers
33,893 sq km land and
7,650 sq km water

More info at the CIA… ​

Netherlands

Welcome

The Netherlands is fortunate with the way in which care for vasculitis patients is organized.

  • There is a government-supported patient organization. 
  • You will find no fewer than 7 hospitals operating a vasculitis center of expertise.
  •  There is the medical platform ARCH that brings together regional knowledge.
  • Reuma Nederland is a very active organization and
  • The Netherlands is internationally active in the European Reference Network RITA, for patients with a malfunctioning immune system.

WELKOM

Nederland mag zich gelukkig prijzen met de manier waarop de zorg voor vasculitispatiënten is georganiseerd.

  • Er is een door de overheid ondersteunde patiëntenorganisatie.
  • U vindt er maar liefst 7 ziekenhuizen met een vasculitis expertisecentrum.
  • Er is het medisch platform ARCH dat regionale kennis samenbrengt.
  • Reuma Nederland is erg actief
  • Internationaal is Nederland actief in het European Reference Network RITA voor patiënten met een niet goed functionerend afweersysteem.

Primary contact:

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Peter

Verhoeven, Peter

  • Email: pmjverhoeven@gmail.com
  • Work: +31880022333

Omschrijving

Patient Advocacy groups

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logo VAS

Vasculitis Netherlands

Disease(s):

ALL Vasculitis Diseases

Behçet

Are you a patient advocacy group ?

respresenting patients with a primary form of vasculitis ?
JOIN US !

Centers of Expertise

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Amsterdam UMC

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Emma Kinderziekenhuis

Erasmus MC

Erasmus MC

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Leiden UMC

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Maastricht UMC

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UMC Groningen

Are you a vasculitis expert centre ?

dealing with one or more forms of a primary vasculitis
JOIN US !

News

Patient Conference Dublin

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Results ADVOCATE study in NEJM

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Do it Now

About us

  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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