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    • A Registered Charity

A registered charity

A 100 % non-profit. Patients working for Patients.

ANBI logo

Vasculitis International is officially called Stichting Vasculitis International (SVI). “Stichting” is Dutch for “foundation”.

 

SVI is a non-profit charity organization founded 15th november 2019. As per the first of January 2020 we have been granted the official Dutch ANBI status and officially recognized as a Public Benefit Organization. 

 

In order to get and maintain that status one has to be transparant and publish a distinct set of data on its website. S​VI welcomes that transparency and through this page we meet all these criteria.

NAME:

The legal name is Stichting Vasculitis International.

Because of the difficult pronunciation of the word “stichting” for those who don’t speak Dutch it is usually abbreviated to Vasculitis International. Because we started off in a very informal way as Vasculitis Europe and because our current main focus is on trying to connect European Countries we are often also referred to as Vasculitis Europe.

REGISTRATION NR. (RSIN):

860613276

CHAMBER OF COMMERCE NR.:

76404684

MISSION STATEMENT:
Encourage and support international collaboration between vasculitis patient advocacy groups (VPAGs).
CONTACT DETAILS:

Company address

Buitenweg 104

3602 PV  MAARSSEN

​The Netherlands

 

Telephone:

+31 6 46 058 45 20

e-mail:

​info@vasculitisint.com

THE LEGAL BOARD:

Positions:

Chairman: P.M.J. (Peter) Verhoeven

Secretary:  I.H.E. (Iris) Sengers

Treasurer: W.H. (Pim) Zaalberg

Remuneration:

Board members do not receive any remuneration for their work.

They are entitled to reimbursement of the costs incurred by them in the performance of their duties.

There is no paid staff in the association. It is operated by volunteers only.

DEED OF INCORPORATION: (Dutch)

191129_SVI_afschrift_oprichting

STAKEHOLDERS INFO ON DOI:

200501_SVI_Stakeholders_Info_Memorandum_and_Articles_of_ Association

BUSINESS MODEL/VALUE PROPOSITION:

Business Model V5_ANBI

ANNUAL REPORTS:

2019  220824_SVI_jaarverslag_2019_Publicatie

2020 220824_SVI_jaarverslag_2020_Publicatie  

2021  220824_SVI_jaarverslag_2021_Publicatie

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About us

  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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