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    • Overview Projects
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  • Diseases

    Introduction

    • Vasculitis Classification

    Large Vessel Vasculitis

    • GCA (Giant Cell Arteritis)
    • Takayasu

    Small Vessel Vasculitis

    AAV (ANCA Associated Vasculitis)

    • EGPA
    • GPA
    • MPA

    Immune Complex Vasculitis

    • Cryoglobulinemic Vasculitis
    • IgA vasculitis (Henoch Schönlein)
    • Anti GBM Vasculitis (Goodpasture)
    • Anti C1q vasculitis (hypocomplementic)

    Medium Vessel Vasculitis

    • PAN (Polyarteritis Nodosa)
    • Kawasaki Disease

    Variable Vessel Vasculitis

    • Behçet
    • Cogan Syndrome

    Single Organ Vascilitus

    • Cutaneous Leucoclastic Vasculitis
  • News
  • About Us
    • Contact us
    • Our Mission
    • A Registered Charity
  • ...

    A registered charity

    A 100 % non-profit. Patients working for Patients.

    ANBI logo

    Vasculitis International is officially called Stichting Vasculitis International (SVI). “Stichting” is Dutch for “foundation”.

     

    SVI is a non-profit charity organization founded 15th november 2019. As per the first of January 2020 we have been granted the official Dutch ANBI status and officially recognized as a Public Benefit Organization. 

     

    In order to get and maintain that status one has to be transparant and publish a distinct set of data on its website. S​VI welcomes that transparency and through this page we meet all these criteria.

    NAME:

    The legal name is Stichting Vasculitis International.

    Because of the difficult pronunciation of the word “stichting” for those who don’t speak Dutch it is usually abbreviated to Vasculitis International. Because we started off in a very informal way as Vasculitis Europe and because our current main focus is on trying to connect European Countries we are often also referred to as Vasculitis Europe.

    REGISTRATION NR. (RSIN):

    860613276

    CHAMBER OF COMMERCE NR.:

    76404684

    MISSION STATEMENT:
    Encourage and support international collaboration between vasculitis patient advocacy groups (VPAGs).
    CONTACT DETAILS:

    Company address

    Buitenweg 104

    3602 PV  MAARSSEN

    ​The Netherlands

     

    Telephone:

    +31 6 46 058 45 20

    e-mail:

    ​info@vasculitisint.com

    THE LEGAL BOARD:

    Positions:

    Chairman: P.M.J. (Peter) Verhoeven

    Secretary:  C.C. van ’t Hof

    Treasurer: F.J.M. Ros

    Remuneration:

    Board members do not receive any remuneration for their work.

    They are entitled to reimbursement of the costs incurred by them in the performance of their duties.

    There is no paid staff in the association. It is operated by volunteers only.

    STAKEHOLDERS INFO ON DOI:

    SVI Stakeholders Info Memorandum and Articles of Association

    BUSINESS MODEL/VALUE PROPOSITION:

    Business Model V5_ANBI

    STRATEGIC PLAN 

    Strategic Plan 2025 – 2027

    ANNUAL REPORTS:

    2019  220824_SVI_jaarverslag_2019_Publicatie

    2020 220824_SVI_jaarverslag_2020_Publicatie  

    2021  220824_SVI_jaarverslag_2021_Publicatie

    2022 230731_SVI_jaarverslag_2022_Publicatie

    2023 240428_SVI_jaarverslag_2023_Publicatie 

    2024 240430_SVI_jaarverslag_2024_Publicatie

    collaborate

    join us today 

    Do it Now

    About us

    • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
    • If there is no existing VPAG in a particular country we can  help to create one.
    • We collaborate with any institution willing to help us in achieving these goals.

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