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      • AEVASI – Spain
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United States

North America, bordering both the North Atlantic Ocean and the North Pacific Ocean, between Canada and Mexico.

total : 9,833,517 sq km
land:   9,147,593 sq km
water:    685,924 sq km
note: includes only the 50 states and District of Columbia, no overseas territories

342 million people

More info at the CIA’s World Fact Book

statue of Liberty

Welcome

In the USA patients, doctors, researches and anybody else professionally involved in vasculitis, are working together in the Vasculitis Foundation.

The Vasculitis Foundation was founded as a patient advocacy group for patients with what in those days was called Wegener’s disease and now is referred to as Granulomatosis with Polyangiitis (GPA).

 

Welcome

In the USA patients, doctors, researches and anybody else professionally involved in vasculitis, are working together in the Vasculitis Foundation.

The Vasculitis Foundation was founded as a patient advocacy group for patients with what in those days was called Wegener’s disease and now is referred to as Granulomatosis with Polyangiitis (GPA).

 

Primary contact:

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Jopyce Kullman

Joyce Kullman

Executive director

  • Email: jakullman@vasculitisfoundation.org
  • Work: +1 816.436.8211

Patient Advocacy groups

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Vasculitis Foundation

Disease(s):

ALL Vasculitis Diseases

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respresenting patients with a primary form of vasculitis ?
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Centers of Expertise

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dealing with one or more forms of a primary vasculitis
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News

Tag-der-Selbsthilfe

Germany’s Tag der Selbsthilfe

EC revokes Market Authorisation Tavneos®

NEJM Retracts avacopan article

NEJM Retracts avacopan article

CSL Vifor

CSL Vifor commitment to the AAV community

upate tavneos 260627

Tavneos update 26 June 2026

SVI Update Tavneos

Tavneos update 17 June

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About us

  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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