Ga naar de inhoud
  • Country
    • Finland
    • France
    • Germany
    • Greece
    • Italy
    • Ireland
    • Japan
    • Netherlands
    • Poland
    • Spain
    • United Kingdom
    • USA
  • VPAGs
    • AEVASI
    • AIVA
    • APACS
    • Association Takayasu France
    • ELEANA
    • France Vascularites
    • Kosapo
    • SHG Mainz
    • Suomen Vaskuliittiyhdistys ry
    • Vaskulitis e.V.
    • Vasculitis Foundation
    • Vasculitis Netherlands
    • Vasculitis Poland
    • Vasculitis UK
    • VIA
  • Hospitals
  • Institutions
  • Projects
    • Overview Projects
    • 2024 AAV Patient Summit
    • 2024 Barcelona Patient Conference
      • About Barcelona 2024
      • Videos Patient Conference Barcelona 2024
      • Videos Talkshows Barcelona 2024
    • 2023 AAV Summit Madrid
    • 2022 Dublin Patient Conference
      • About Dublin 2022
      • Videos Patient Conference Dublin 2022
      • Videos Talkshows Dublin 2022
    • FAIRVASC
    • Rare Revolution Magazine
    • SEE ME. HEAR ME.
    • VOICES
  • Diseases

    Introduction

    • Vasculitis Classification

    Large Vessel Vasculitis

    • GCA (Giant Cell Arteritis)
    • Takayasu

    Small Vessel Vasculitis

    AAV (ANCA Associated Vasculitis)

    • EGPA
    • GPA
    • MPA

    Immune Complex Vasculitis

    • Cryoglobulinemic Vasculitis
    • IgA vasculitis (Henoch Schönlein)
    • Anti GBM Vasculitis (Goodpasture)
    • Anti C1q vasculitis (hypocomplementic)

    Medium Vessel Vasculitis

    • PAN (Polyarteritis Nodosa)
    • Kawasaki Disease

    Variable Vessel Vasculitis

    • Behçet
    • Cogan Syndrome

    Single Organ Vascilitus

    • Cutaneous Leucoclastic Vasculitis
  • News
  • About Us
    • Contact us
    • Our Mission
    • A Registered Charity
  • ...
    Vasculitis_UK

    Vasculitis UK

    Go to website
    Facebook Linkedin Instagram
    • Diseases: ALL Vasculitis Diseases
    • United Kingdom

    Welcome !

    Vasculitis UK has been a Registered UK Charity since 1992. Charity No. 1019983

    The Trust was originally set up in 1992, by the family and friends of Stuart Strange. Stuart died in his late 20’s from the complications of Wegener’s Granulomatosis.

    During the time Stuart spent in Papworth hospital he started to raise funds for vasculitis patients. Following Stuart’s death his sister Sue and his wife Rachel decided they would carry on with the work Stuart had started and vowed do everything they could to help other victims of this devastating disease which, until Stuart was diagnosed, they’d previously never heard of. There had been no help for the family when Stuart died and Sue and Rachel wanted to ensure that if they could only give one other person some degree of comfort it was going to be worth it.

    A support group was started and this received charity status in April 1993. Three years later sufficient money had been raised to pay one-third of the £50,000 needed for research into the disease by Dr Martin Lockwood’s team at AddenbrookesHospital in Cambridge. At the fifth anniversary of the Trust being set up there were over 500 Members – a remarkable achievement by any standards.

    Over the years membership; has increased and the reins of the Trust have been in the capable hands of other Trustees whose aims are just as they were originally – to help and support you the vasculitis patient and your family and friends.

    The Present

    During 2011 it was decided that the name of the Trust be changed to “Vasculitis UK”.
    However we still retain our links with the past and Lillian Strange, Stuart’s mother, is still our Lifelong President.

    Contacts

    Loading...

    Mills, Susan

    Vice Chair - widow of former president John Mills MBE

    • Email: susan@vasculitis.org.uk
    • Work: +441629650549

    The aims of Vasculitis UK are:

    • To support those suffering from vasculitis diseases and their families by providing information and advice.
    • To inform and educate those with vasculitis about their illness so that they are empowered to take greater control of it.
    • To work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of vasculitis diseases.
    • To raise awareness of vasculitis disease among medical professionals and the general population.
    • To enable vasculitis sufferers to contact others with vasculitis.
    • To encourage and support the formation and development of local vasculitis support groups.
    • To support research into the causes and effects of vasculitis and into improvements in the diagnosis of vasculitis and into treatment of people suffering from different types of vasculitis
    go to website
    Facebook Linkedin Instagram

    collaborate

    join us today 

    Do it Now

    About us

    • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
    • If there is no existing VPAG in a particular country we can  help to create one.
    • We collaborate with any institution willing to help us in achieving these goals.

    Find

    VPAGs

    Hospitals

    Countries

    Projects

    Act

    Talk to us

    Join us

    Social Media
    Facebook-f Twitter Google-plus-g Youtube Linkedin-in