Eosinophilic Granulomatosis with Polyangiitis (EGPA), previously known as Churg-Strauss Syndrome, is an inflammatory disease of small and medium sized blood vessels. The lungs and skin are commonly affected but it can affect other organs including the heart, kidneys, nerves and bowels.
Eosinophils, a type of white blood cell that typically fights parasite infections and is related to allergies, are found in very high levels in EGPA, both in blood tests and in affected parts of the body.
Germany’s Tag der Selbsthilfe on 16 September highlights the important role of local self-help groups. Vasculitis International is connecting vasculitis SHGs across Germany, combining peer support close to home with wider cooperation, shared knowledge and patient advocacy.
This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.
Last week added another significant step to the avacopan story: on 29 June 2026, the New England Journal of Medicine retracted the original 2021 ADVOCATE article on Tavneos.
