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Kawasaki

​Kawasaki Disease (KD) (also known as Kawasaki Syndrome) is a rare form of vasculitis which affects children and is characterised by inflammation of the medium sized blood vessels throughout the body.

The coronary arteries (arteries supplying the heart muscle) are the commonest arteries affected.
​
The main concern in children is that inflammation of the coronary arteries can lead to aneurysms (widening and weakening of the artery wall) and later can lead to narrowing or stenosis reducing the blood supply to the heart.

Kawasaki

Patient Advocacy groups

No VPAGs for this SPECIFIC disease. See VPAGs covering ALL Vasculitis Diseases

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Centers of Expertise

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Emma Kinderziekenhuis

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dealing with one or more forms of a primary vasculitis
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News

EC revokes Market Authorisation Tavneos®

7 August, 2026 No Comments

This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.

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NEJM Retracts avacopan article

NEJM Retracts avacopan article

1 July, 2026 No Comments

Last week added another significant step to the avacopan story: on 29 June 2026, the New England Journal of Medicine retracted the original 2021 ADVOCATE article on Tavneos.

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CSL Vifor

CSL Vifor commitment to the AAV community

26 June, 2026 No Comments

CSL Vifor Reaffirms Its Commitment to the Vasculitis Community Amid difficult news, a partner that stays present. On the same day that the EMA published

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  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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