AEVASI (Spain) AIVA Italy APACS (Italy) Association Takayasu France ATAK (Takayasu Spain) ELEANA (Greece) France Vascularites Kosapo (Japan) SHG Mainz (Germany) SHG Frankfurt (Germany) SHG Nordbayern (Germany) SHG Sachsen (Germany) VASAS (Switzerland) Vasculitis Awareness Ireland Vasculitis Foundation (USA) Vasculitis Foundation (Canada) Vasculitis (Poland) Vasculitis Society (India) Vasculitis Stichting (Netherlands) Vasculitis UK (United Kingdom) Vaskuliittiyhdistys (Finland) Vaskulitida.cz (Czech Republik)
The latest news......
Germany’s Tag der Selbsthilfe
Germany’s Tag der Selbsthilfe on 16 September highlights the important role of local self-help groups. Vasculitis International is connecting vasculitis SHGs across Germany, combining peer support close to home with wider cooperation, shared knowledge and patient advocacy.
EC revokes Market Authorisation Tavneos®
This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.
NEJM Retracts avacopan article
Last week added another significant step to the avacopan story: on 29 June 2026, the New England Journal of Medicine retracted the original 2021 ADVOCATE article on Tavneos.
patients
Find Patient Advocacy Groups (VPAGs)
hospitals
Find vasculitis expertise
projects
Find out about the projects we are working on.