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    GPA

    GPA stands for Granulomatosis with PolyAngiitis. It is an ANCA Associated form of vasculitis (AAV) which is a subgroup of small vessel vasculitis . Until 2012 the disease was referred to as Wegener’s disease, Wegener’s Granulomatosis or Morbus Wegener. Dr. Wegener was the pathologist who first recognized the characteristics of this syndrome as a separate disease and published an important paper about it. GPA is most common form of AAV.

    GPA

    Patient Advocacy groups

    AIVA

    Disease(s):

    GPA

    MPA

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    respresenting patients with a primary form of vasculitis ?
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    Centers of Expertise

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    Maastricht UMC

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    dealing with one or more forms of a primary vasculitis
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    News

    Melbourne

    22nd International Vasculitis Workshop

    5 oktober, 2025 Geen reacties

    Melbourne Februari 21-25 2026
    The 22nd edition of this international workshop on vasculitis will take place from February 21 to 25, 2026, in Melbourne, Australia. Organized by the Australian and New Zealand Vasculitis Society (ANZVASC).

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    Prague

    3rd European Vasculitis Patient Summit

    5 oktober, 2025 Geen reacties

    Prague 14-15 Nov 2025.
    Once a year, patient representatives from across Europe gather for the European Vasculitis Patient Summit.This special meeting offers a unique platform to exchange experiences, share knowledge, and discuss current vasculitis topics.

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    Fasenra not reimbursed in France

    21 september, 2025 Geen reacties

    French EGPA patients and their doctors received disappointing news recently when the French health authority (HAS) decided not to reimburse Fasenra (benralizumab) for treating EGPA. This decision has created significant concern within the EGPA community, as it limits access to what could be an important alternative treatment option.

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    • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
    • If there is no existing VPAG in a particular country we can  help to create one.
    • We collaborate with any institution willing to help us in achieving these goals.

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