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    logo-vaskulitida-cz

    Vaskulitida.cz

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    • Diseases: ALL Vasculitis Diseases
    • Czech Republic

    We are a very young organization, founded in the summer of 2025.
    We want to be there for all people with systemic vasculitis and their loved ones.
    Because we still have a lot of work to do with few people, we have chosen to focus on ANCA-associated vasculitis for the time being. That means GPA, MPA, and EGPA.
    What we want to offer is primarily high-quality information and support for patients and the people in their immediate environment.
    In addition, we want to raise awareness of vasculitis in general and stimulate and support scientific research.
    We are very much looking forward to collaborating with other patient organizations. After all, as mentioned, we still have a lot to learn and do.

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    KRBCOVÁ, KATEŘINA

    President

    • Email: sekretariat@vaskulitida.cz

    Jsme velmi mladá organizace, založená v létě roku 2025.
    Chceme být k dispozici všem lidem trpícím systémovou vaskulitidou a jejich blízkým.
    Protože máme před sebou ještě mnoho práce a málo lidí, rozhodli jsme se prozatím zaměřit na ANCA-asociovanou vaskulitidu. Tedy na GPA, MPA a EGPA.
    Chceme především poskytovat kvalitní informace a podporu pacientům a lidem v jejich bezprostředním okolí.
    Kromě toho chceme obecně zvýšit povědomí o vaskulitidě a stimulovat a podporovat vědecký výzkum.
    Velmi se těšíme na spolupráci s jinými pacientskými organizacemi. Jak již bylo řečeno, máme ještě mnoho co se učit a co dělat.

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    About us

    • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
    • If there is no existing VPAG in a particular country we can  help to create one.
    • We collaborate with any institution willing to help us in achieving these goals.

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