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Vasculitis Poland

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  • Diseases: ALL Vasculitis Diseases
Poland

The Association of Patients with Systemic Vasculitis “Vasculitis” was established on January 21, 2020. It brings together patients, their relatives and doctors, and its primary goal is to act for the benefit of patients and raise awareness about systemic vasculitis (SV).

When you have a rare disease that you fear and do not understand, you try to find people who are in the same situation as you. Get to know someone who already knows what you are going through and what you are struggling with. Share thoughts and experiences. Humanly find comfort and understanding.

Contacts

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Skrzypiec, Izabela Agata

Chair

  • Email: vasculitispoland@gmail.com
  • Work: +48 459 341 875, +48 788 744 631

Stowarzyszenie Chorych na Układowe Zapalenia Naczyń „Vasculitis” powstało 21 stycznia 2020 roku. Zrzesza pacjentów, ich bliskich i lekarzy, a jego podstawowym celem jest działanie na rzecz chorych i zwiększanie świadomości o układowych zapaleniach naczyń (UZN).

Kiedy chorujesz na chorobę rzadką, której się boisz i której nie rozumiesz, to starasz się znaleźć ludzi, którzy są w takiej samej sytuacji jak Ty. Poznać kogoś, kto już wie, co przeżywasz, z czym się zmagasz. Podzielić się myślami 
i doświadczeniem. Po ludzku znaleźć pocieszenie i zrozumienie.

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Do it Now

About us

  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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