Patients Worldwide Invited to Participate
International Survey on Living with Cogan’s Syndrome.
Oxford University Hospitals NHS Foundation Trust is conducting the first international survey on the lived experience of people with Cogan’s syndrome. The study is aimed explicitly at patients with Cogan’s syndrome and seeks responses from across the world — every contribution matters given the rarity of the condition.
The anonymous survey covers the diagnostic journey, treatment experiences, and the impact of the disease on daily life. It was developed in close collaboration between patients and healthcare professionals, ensuring that lived experience shaped the research from the outset.
The survey takes approximately 20–30 minutes to complete and remains open until the end of June 2026. Participants are encouraged to complete it in full, as incomplete responses may not be usable in the final analysis.