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GCA (Giant Cell Arteritis)

GCA is a disease characterised by inflammation of large and medium sized blood vessels.
An alternative name for this condition is “Temporal Arteritis” as the blood vessels in the temple area of the head (sides of the forehead) are commonly affected.

The giant cells referred to are specific collections of immune system cells seen in the areas of inflammation if a biopsy is performed.

This condition is one of the commonest forms of vasculitis.
It is more commonly seen in older patients and is seldom diagnosed below the age of 50.

GCA

Patient Advocacy groups

No VPAGs for this SPECIFIC disease. See VPAGs covering ALL Vasculitis Diseases

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Centers of Expertise

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Charles University Prague

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dealing with one or more forms of a primary vasculitis
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News

Tag-der-Selbsthilfe

Germany’s Tag der Selbsthilfe

10 September, 2026 No Comments

Germany’s Tag der Selbsthilfe on 16 September highlights the important role of local self-help groups. Vasculitis International is connecting vasculitis SHGs across Germany, combining peer support close to home with wider cooperation, shared knowledge and patient advocacy.

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EC revokes Market Authorisation Tavneos®

7 August, 2026 No Comments

This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.

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NEJM Retracts avacopan article

NEJM Retracts avacopan article

1 July, 2026 No Comments

Last week added another significant step to the avacopan story: on 29 June 2026, the New England Journal of Medicine retracted the original 2021 ADVOCATE article on Tavneos.

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  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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