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NEWS

What’s going on in the world of vasculitis…?

denver

2026 Symposium Vasculitis Foundation

18 May, 2026

Denver, July 17–19 Our colleagues at the Vasculitis Foundation are hosting their 2026 International Vasculitis Symposium in Denver, Colorado from

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Ingternational Vasculitis Day

International Vasculitis Day 2026 !

14 May, 2026

Every year on May 15th, the global vasculitis community pauses to be seen. Not just as patients. Not just as

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SVi-Congrats-VF-40Yrs

40th anniversary Vasculitis Foundation.

6 May, 2026

Vasculitis International is pleased to extend its warmest congratulations to the Vasculitis Foundation (VF) on the occasion of its 40th

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ema-review-tavneos

Patients should not pay for failure in science

5 May, 2026

Vasculitis International has published its position statement on the ongoing regulatory review of TAVNEOS® (avacopan) — and warns that data integrity and risk/benefit analysis are two very different issues and must not be treated as one, when taking action. Otherwise the patient pays for science failure.

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SVI Update Tavneos

Update Tavneos® April 29th 2026

29 April, 2026

The FDA has moved from a review to a formal proposal to withdraw approval of Tavneos in the United States.
This is a more serious step than a review, but it is still not a final decision.
In Europe, the EMA review is still ongoing. No conclusions have been reached yet, and Tavneos is still available.

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FDA warning avacopan

Update Tavneos Review – April 2026

5 April, 2026

The U.S. Food and Drug Administration (FDA) issued a Drug Safety
Communication on 31 March 2026, alerting healthcare professionals and patients to serious cases of drug-induced liver injury (DILI) in postmarketing surveillance of avacopan — including cases with fatal outcomes.
While the FDA operates outside the European regulatory framework,
its postmarketing findings are directly relevant to the EMA’s ongoing assessment.

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