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Behçet

​Behcet’s (beh-CHETS) disease, also called Behcet’s syndrome, is a rare disorder that causes blood vessel inflammation throughout your body.
The disease can lead to numerous signs and symptoms that may seem unrelated at first. They may include mouth sores, eye inflammation, skin rashes and lesions, and genital sores.
The effects of Behcet’s disease vary from person to person and may clear up on their own.
Treatment involves medications to reduce the signs and symptoms of Behcet’s disease and to prevent serious complications, such as blindness.

Patient Advocacy groups

No VPAGs for this SPECIFIC disease. See VPAGs covering ALL Vasculitis Diseases

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respresenting patients with a primary form of vasculitis ?
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Centers of Expertise

Erasmus MC

Erasmus MC

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dealing with one or more forms of a primary vasculitis
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News

Tag-der-Selbsthilfe

Germany’s Tag der Selbsthilfe

10 September, 2026 No Comments

Germany’s Tag der Selbsthilfe on 16 September highlights the important role of local self-help groups. Vasculitis International is connecting vasculitis SHGs across Germany, combining peer support close to home with wider cooperation, shared knowledge and patient advocacy.

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EC revokes Market Authorisation Tavneos®

7 August, 2026 No Comments

This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.

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NEJM Retracts avacopan article

NEJM Retracts avacopan article

1 July, 2026 No Comments

Last week added another significant step to the avacopan story: on 29 June 2026, the New England Journal of Medicine retracted the original 2021 ADVOCATE article on Tavneos.

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  • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
  • If there is no existing VPAG in a particular country we can  help to create one.
  • We collaborate with any institution willing to help us in achieving these goals.

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