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    Behçet

    ​Behcet’s (beh-CHETS) disease, also called Behcet’s syndrome, is a rare disorder that causes blood vessel inflammation throughout your body.
    The disease can lead to numerous signs and symptoms that may seem unrelated at first. They may include mouth sores, eye inflammation, skin rashes and lesions, and genital sores.
    The effects of Behcet’s disease vary from person to person and may clear up on their own.
    Treatment involves medications to reduce the signs and symptoms of Behcet’s disease and to prevent serious complications, such as blindness.

    Patient Advocacy groups

    No VPAGs for this SPECIFIC disease. See VPAGs covering ALL Vasculitis Diseases

    Are you a patient advocacy group ?

    respresenting patients with a primary form of vasculitis ?
    JOIN US !

    Centers of Expertise

    Erasmus MC

    Erasmus MC

    Are you a vasculitis expert centre ?

    dealing with one or more forms of a primary vasculitis
    JOIN US !

    News

    Melbourne

    22nd International Vasculitis Workshop

    5 oktober, 2025 Geen reacties

    Melbourne Februari 21-25 2026
    The 22nd edition of this international workshop on vasculitis will take place from February 21 to 25, 2026, in Melbourne, Australia. Organized by the Australian and New Zealand Vasculitis Society (ANZVASC).

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    Prague

    3rd European Vasculitis Patient Summit

    5 oktober, 2025 Geen reacties

    Prague 14-15 Nov 2025.
    Once a year, patient representatives from across Europe gather for the European Vasculitis Patient Summit.This special meeting offers a unique platform to exchange experiences, share knowledge, and discuss current vasculitis topics.

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    Fasenra not reimbursed in France

    21 september, 2025 Geen reacties

    French EGPA patients and their doctors received disappointing news recently when the French health authority (HAS) decided not to reimburse Fasenra (benralizumab) for treating EGPA. This decision has created significant concern within the EGPA community, as it limits access to what could be an important alternative treatment option.

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    About us

    • We encourage and support Vasculitis Patient Advocacy Groups (VPAGs) to collaborate and grow stronger.
    • If there is no existing VPAG in a particular country we can  help to create one.
    • We collaborate with any institution willing to help us in achieving these goals.

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